It is nearly 10 months since my thyroidectomy and my life is nearly back to normal. I say 'nearly' because I still have problems with hypocalcaemia or sometimes hypercalcaemia. When my thyroid was removed , all 4 of the parathyroid glands were removed too. Two were re-injected into my neck muscle, and they are being slow to start working again at full strength. Every now and again, I start getting weird symptoms like muscle twitches which happen randomly all over my body, and I become very apathetic and want to lie on the couch all day and watch DVDs. The first time it happened I had no idea what it was and went to my doctor who sent me for blood tests for every possible thing, and it turned out that my blood calcium levels were getting to the very top of the range so I had to cut down the number of calcium pills I was taking. The second time it happened I recognized the symptoms and just requested a blood test for calcium levels and sure enough, the levels were high again.
So I am still taking calcium and vitamin D to help me absorb it, but much lower doses than before.
I am still getting used to the thyroxine as well, there are some weird symptoms which are caused by high T4 levels and I have those too. Unfortunately I can't tell which symptoms are high calcium or high T4 so I have to go for a blood test each time.
Anyone going through this need to know that it takes at least a year to get the right level of medication. Other than that, I am more or less back to normal apart from getting very tired in the evenings so I don't; tend to go out late these days.
Best of luck to anyone else out there with PTC.
