My Story

In 1999 I was doing some head rolling exercises and popped a cyst on my thyroid which suddenly swelled into a lump. I was referred to an endocrinologist. I had an ultrasound, then a nuclear medicine scan, and a fine needle biopsy of the lump. It was diagnosed as a cyst and I was told to see my doctor if anything changed. In 2006, I went to the doctor because the lump was making me cough. It was ultra-sounded, blood tests were taken and were all 'within normal limits' and I was told 'its a multi nodular goiter' and to come back if there was any change in size. From then on, nothing changed, I saw my doctor regularly, blood tests were within normal range.

Then in 2013 , I lost a bit of weight which was an incredible struggle (15 kgs) and the lump seemed to show up a bit more. I finally went to the doctor at the end of 2013. The lump was ultra sounded and found to be calcified, plus there were multiple calcified lymph nodes the size of marbles. Christmas 2013 got in the way, labs and private X-ray clinics were closed so it wasn't until late January 2014, that I had an ultrasound guided fine needle biopsy done on 2 thyroid nodules and a lymph node. All were positive for abnormal cells. This is my story from then.
If you found my story useful , could you please leave a comment or a question? It does feel that I am speaking into an empty room right now!

Sunday, July 1, 2018

4 Years Post Thyroidectomy

It is now 4 years since I had my Thyroid removed and I'm finally on a stable dose of Thyroxine. For a few years it was adjusted at nearly every 3-6 month check up but I seem to have stayed on the same dose now for at least a year.

I'm still taking calcium tablets and the dose has gone up rather than down. I was feeling very tired in the evenings and the Dr told me to take an extra Calcium tablet and that seemed to work. So now I think I will be taking calcium for the rest of my life. The Parathyroid glands which were disturbed and reimplanted are working partially not fully. I didn't ever manage to eat enough calcium in my normal diet to keep my blood calcium high enough.

Other than medication,  life is normal, I still struggle with my weight and that has been the same since I stopped growing at 13. Nothing changes there.

I hope anyone reading this, has such a good outcome after thyroid cancer and surgery.

Life is good!